I have been pushing through physical rehab these past 7 months. Today, my progress was evaluated. Mainly balance and strength testing with all these stupid human tricks like toe tapping, standing on one foot, the sobriety test walk, standing with eyes closed. I scored very well on most parts (flunked the sobriety test walk, hmm) and set a record lap count for the 6-minute walk. The director later told me that I was a "model patient" for the cancer recovery program and asked to include my history and progress in the study presentation she will make to the oncology board next month. That made my day!
You see, most people struggle through cancer treatments. We persevere through all the untoward effects, focusing on one thing, remission. A lot of us make it to remission at least once. But our bodies are wasted. Our spirits are bruised. We look to our medical team to help us. After all, our team has guided our every move up to this moment. We are told to accept our "new normal". We "might not be the same". Duh. We have lost hair, lean body tissue, muscle strength, balance, nerve function, bowel function, appetite, body image, sexuality, fingernails, or whole body parts. By the end of treatment, by the time we achieve remission (yay!), we are wrecked. Well, that's our "new normal". That is the standard of care as it stands today. That is so wrong.
I reject my new normal. I resent that I am left hanging, trying to scrounge and cobble together a way to recover. Cancer treatment should not end at remission, it needs to end after recovery of health. Health does not mean absence of visible cancer cells. Health means strength, vitality, spirit. I am thankful that I stumbled upon this Cancer Rehab program at my health center. It wasn't offered to me at the hospital or my oncologist's office. I found a brochure at my physical therapist's office. She happens to run the program. I am just lucky to have been assigned to her. Cancer Rehab needs to be a standard part of cancer treatment. Just as a stroke victim gets rehab or a paraplegic gets rehab, cancer patients need rehab. Health insurance needs to cover it. We have lost our health and it needs to be restored. We need help to do that.
That's why I am so excited to be included in this study. It is a small part that I can do to demonstrate not only how much rehab is needed, but also how much it can benefit the cancer patient. I can scarcely imagine my life without the benefits of this program. I can scarcely imagine the lives of those who do not have access to such care. We need more of these programs.
OK, enough for now. Thanks for reading. Stepping off the soapbox now. :)
I like the definition of health that you are using...it is about quality of life. I have not heard of "cancer rehab" before and I agree that it is definitely needed.
ReplyDeleteKeep up the good work!
I SO agree that physical therapy should absolutely be part and parcel of any post-cancer surgery. YAY on being included in the presentation!
ReplyDeleteNormal, shnormal! Stay on that soapbox! ;-)
Oh I couldn't agree more. Especially because NED is a confusing term and it does not mean cancer free. Just no "evidence" of cancer.
ReplyDeleteYou turn NED and things slow down, but we are soooooooooooooooo fatigued, and need support and something to keep us rebuilding.
I was lucky to find a WALC study and get some psychological support after chemo ended.....and I exercise on my own....
But the Gods' truth is that there is a motor missing. I'm not totally depressed, just tired. Tired....
So to get our and walk in rainy Seattle just sounds aweful.
A rehab program would be very useful......I don't even have a dog to walk. I wish I did but I can't have one in my apartment...
Good post
I love the line"Cancer treatment should not end at remission, it needs to end after recovery of health. " I took part in a Cancer Support Community ( The Wellness Community ) 8 week program called Transitions. At least it gave me an idea of what to do and how to correctly do the exercises , eat right to become stronger. 7 years since diagnosis and one recurrence later I don't really remember what normal was but I sure am hoping to get there.
ReplyDelete